A Little Booklet about Health 2.0

So today my “Little Booklet about Health 2.0” was published in the first e-bookstore Kindle.


It is just a little “amuse”, made for those who are looking for what’s in it for them íf there is something in it for them. It appears that it can help to “convince” others to take a step into exploring what health 2.0, or in my opinion Participatory Healthcare can bring. (see also our systematic review on health 2.0 definitions)

In this booklet i tried to provide a different way of thinking about participatory healthcare. You are invited to share the discussion on how web 2.0 changes the healthcare sector, and how to implement web 2.0 concepts in the daily practice of physicians and healthcare providers. 

After our publisher first printed and published in Dutch in several bookstores (like Managementbook.nl, Selexyz, Bol.com, the Apple iBooks-store (US but Dutch booklet) and of course Eburon itself).

Also as of September a USB stick with a selection of 5 managementbooks will be available (in Dutch( with i.e. this booklet on it. 

Also the e-book version came available (Managementbook.nl, Selexyz, Bol.com and of course Eburon itself) 

It is now is available in English too. at first in the Amazon Kindle Store as a e-book first, the printed version will follow soon. Also we expect to appear in the Apple iBook today or within days. Will update here.



UPDATE April 2011  : One year since A Little Booklet About Health 2.0, the Radboud REshape & Innovation Center presents an update. What is the present state of affairs? What are the dilemmas, obstructions, and concerns facing the development of Health 2.0?

Interviews and portraits conveniently provide insight into the future of health care, and how to get there. Patients, doctors, entrepreneurs and administrators elucidate that this is not going to happen by itself. Nevertheless, Health 2.0 has proved to be more than just a hype, it has become reality. The relationship between patient and health-care provider is decidedly undergoing change.

Excerpts from Health 2.0, the update:

“Impose a fee on physicians and health-care institutions that refuse to participate.”

“Less direct contact does not mean that your patient is less central. That’s a perspective from the traditional mode of thinking about health care.”

“I am getting more ‘two-point-o’ by the day. It saves me for example a lot of phone calls with secretaries.” 


USB with Healthcare Data travels alone

“Just put it here Doc, handing over an USB sticky. ‘Then I’ll put it later on in my PHR, so I later can send back by the other healthcare-professionals, I have been contracted.”

Consult information on stick 
After the doctor, in full compliance with protocol and standards, did transfered the data from the last consultation including the values of the lab on the PHR-stick of Mr. Jackson the latter leaves for home. A little annoyed that traveling by bus to the hospital that is located a little further away, but on the other hand the advantages of this hospital are worth this travel. Making appointments by the internet is great, as well as the time they are taking to inform you about every thing. 

Down jacket 
When disembarking from the bus, the little coat hooks behind a chair, Mr.Jackson gracefully liberates it from the chair with a swing. Now the last 2 minutes walk to home. 

Stick Lost 
That the graceful sweep of the jacket made the USB stick tumble from the pocket on the floor of the bus, hasn’t been noticed by him. So, the sticks’ undetected travel continues. It only becomes clear a day later as Hr. Jackson wants to supplement his PHR. What happened with the sticky, will always remain unknown

But …. what íf it falls into  comes in the wrong hands, what íf the data appears on the Internet, or …. 

Health 2.0 and accountability.

We are facing a new challenge I think. Health 2.0 stands for openness, transparency, new cooperation between patient and doctor. It also is about common responsibility to. As in the case of the lonely traveling USB Stick. 

Data ‘authentication’ 
We will need to consider how to handle data provided to others. Perhaps find a way to provide such data to “authenticate” as provided data, so some kind of “watermark”. How can ever be traced where an x-ray comes as something pops up. The hospital may have its act together in perfect order, but by another healthcare provider or patient arrives at a place less desirable. 

Patients Advocates 

Patients want their own data, Patient Advocates and e-patient Dave gives us a nice look at some aspects of this example in these two videos below from one of his keynotes. 

Therefore in this sense, I call to think up front. we are accountable to do anything to make absolutely sure what the origin of data is, digitally and in hard copy and on the other hand to try all within our power to share patients’ data with them.

En garde, there is much to do.


e-Patient Dave: Authentic Value: Being Known in e-Patient Communities (Part 1 of 2)

e-Patient Dave: Authentic Value: Being Known in e-Patient Communities (Part 2 of 2)


Health 2.0 and Medicine 2.0 : a systematic review published in JMIR

Last friday our systematic review published in JMIR got published in the Journal of Medical Internet Research (JMIR)

A while ago i wondered what people would consider Health 2.0 or Medicine 2.0 and sat down about this matter with one of my junior research fellows Tom van de Belt ( @tom_zorg20 ) and started looking at the vast amount of “definitions”. It was only few weeks later we agreed to set up a systematic review on these term and maybe even publish a new one, covering all the aspects of the ones we’ve found. also this might be needed since over time, processes evolve. 

Since this whole process of evolution from health 1.0 up until Participatory Healthcare has become one of the key points of our Radboud University Nijmegen Medical Centre and my personal mission or dream.

During the process of making this review one of my other research fellows Sivera Berben ( @sivera_zorg20 ) did put in her “50cents” as well and made the review stronger and more complete. Also the help of Lisette Schoonhoven (@Lisette_IQHC) was more than welcome, her great expertise helped out a lot.

But : Tom did the job, he did a great job. we’ve talked and talked in the beginning about how the research would be done, what we did see as differences in the “definitions” and how it evolves over time. Tom every time again, took a deep dive into the articles, and every article i came across and tossed in, sometimes led to a different approach.

So now it’s there, it’s our first step in this journey, although our study of the use of social media in European Hospitals is already another, that soon (after newly updated data) will lead to a nice published article. 

So how about THE definition ? Well, our approach to this will be new, not done before and soon to be revealed i.e. right here 😉  Based of course on our review :  http://www.jmir.org/2010/2/e18/HTML


so … to be cont’d …



UPDATE  July, 29th 2010 : we’ve started crowdsourcing with a questionnaire : http://lucienengelen.posterous.com/test-17

Ties, 82 years : twitters.


His daughter advised him 15 months ago to twitter. Also made a blog for him. The latter was not a success, too much work, he says. But the twittering is fun even more. Since then, regular irregular Ties is available on Twitter. Regular since these contacts he does not want to miss. Irregularly : in the middle of night because he sometimes he can be found at 3 or 5 AM: “If I can not sleep eh!”

Ties and i met at the Seminar “Elderly in (Social) Media” by @incompanymedia of @lucasvroemen of a beautiful castle in Limburg for the first time “in real life”. Almost from the beginning 15 months ago on twitter I contacted him, his daughter introduced him on Twitter.
We agreed beforehand that I would do a  brief video interview with him. About Twitter, aging, what good is, how hard and how much fun.



On the way out, he proved himself again realist. “To Twitter” I called after him. Ties turned around and came back: “Once I’m gone, then you get all my last tweet, just someone else pushed SEND”.



Daily prescription for every healthcare professional

Everyone should know the power that comes from patient blogs. On a daily basis in our own Radboud University Nijmegen Medical Centre, people are writing, sharing, asking about the things they encounter, experience and feel.

For me the weblog of Maarten was an eye-opener as i wrote earlier, but every day i try to read one or more “patient-blogs” from all over the world. 

Today i read the posting of Gaston, the father of Emilie, his daughter who has cancer and as of today is bold. My heart cries (google translation), he wrote, and reading his post and blog (pointed to by @punkmedia) at that point this “big guy” here is once again with two feet on the ground. Silence, this isn’t supposed to be this way for a little kid. 

Every healthcare professional should read at least once a day an patient-blog, wether or not from his own facility, just to constantly understand what com-passion is al about. Com-passion is not feeling 

As for Emilie; i hope she’ll get well of course. I’m certain her doc’s and other staff are doing all they can.

Her parents Gaston and Cecile : i would like praise you Heroes for the “guts” to share in a weblog, not only for good advices, and helping other patients and their family or informal care. Also for sharing your thoughts and emotions. But also to help Healthcare professionals reading what’s at stake, what’s going on, and what’s important. And yes, many many Healthcare professionals don’t need that, but “some” do, that’s worth it.

Only then we can improve healthcare besides research, and medicine into Participatory Healthcare.