Aldith : “my Sis Aisha passed on to the Other Side”

Thursday April 28th, 2011 a great woman passed away : @ashia_hunkar is no more.
I never met her personaly, but through her sister Aldith, and reading her blog i know about her ambition, drive and passion fighting her disease.  She was what we call a e-patient : empowered, engaged, emancipated and an expert about her disease.

During preparations Aldith and i talked a lot about e-patients and the this that have to change in healthcare. Often Aldith mentioned examples from her sister Aisha, and i asked her to tell about them in the opening. In that way Aisha was with us, during the whole day

Her Sister Aldith talked about her during the opening and the closing ceremony.

 

How innovation could transform health care | The Fifth Conference

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How innovation could transform health care

Innovation is a wonderful phenomenon.  It leads to all sorts of astonishing products and services like the internet and the tablet PC.  As big an impact these innovations have on our lives, it is in health care that innovation is of existential importance.  To be blunt, innovation in health care matters because most of us will have to face a miserable disease at some point in our lives; and all of us will have to face death.  If we continue to innovate, then one day in the future people may not need to undergo the distress of cancer, heart disease or Alzheimer’s.  Perhaps we even await a future where we transcend the limitations of our physical bodies—as imagined by science fiction authors like Peter F Hamilton and predicted by futurists such as Ray Kurzweil.  Today, however, we have to make do with our present health care system—and its challenges and limitations.

Life is short

The challenges are diverse. The most fundamental limitation is the fact that most of us continue to suffer from a number of persistently incurable diseases. Even in the European region, where life expectancy is relatively high, the healthy life expectancy is only 67 years (1). That is just too short given the number of things that most of us would like to do in our lives.

Inequality

Perhaps most deplorable, however, is the gaping inequality in the world when it comes to health and health care.  According to the 2010 statistics of the World Health Organisation, life expectancy in the European region averages 75 years; in the African region it is 53 years (and healthy life expectancy is only 45).  In Africa the probability that a child will die under the age of 5 is 142 per 1000 live births; in Europe that number is 14 per 1000 live births.  In Africa there are 2 doctors per 10,000 population; in Europe that figure is 33. Notwithstanding the wonders of the digital era, when it comes to health and health care much of the world lives in medieval circumstances. 

…… read more click link below

Also from the hand of Frank Boermeester of The Fifth Conference this great overview article. (mentioning our REshape Center btw 😉

TED, the iPad and the quest for participatory healthcare | The Fifth Conference

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TED, the iPad and the quest for participatory healthcare

Lucien Engelen and his team at the Radboud Reshape & Innovation Center are using proven methods and technologies to help change the way healthcare is done

How do you encourage a large university hospital to make the transition to participatory healthcare? “Develop a Swiss army knife”. Lucien Engelen and his team at the Radboud Reshape & Innovation Center are addressing the problem in a multi-pronged but highly pragmatic manner.  Firstly, they’re getting healthcare workers to talk about the issues.  Not by handing out flyers, but by organizing fun Pecha Kucha sessions and what could be Europe’s largest TEDx event yet, focused exclusively on the future of healthcare.  Secondly, they’re facilitating real change in the hospital’s work processes.  Not by launching a major ‘change’ project but by experimenting with consumer technology—such as the iPad and Skype—that lowers the threshold for patient participation.

Can you tell us a little about the Radboud REshape & Innovation Center?

The Radboud REshape Center was set up by the end of 2010 when the Executive Board of the Radboud University Nijmegen Medical Centre as part of the adopted strategy that we need to transition toward participatory healthcare.  This was a pretty fundamental decision, as a result of intense discussions I had with the board, for the hospital because it touches on the core of what we are,.  It acknowledges that there probably is nothing as paternalistic as a hospital and that a total mental shift will be required if we are to succeed. At base it means that we need to start informing patients in such a way that they are able to make decisions—together with the physician—about their treatment.  

Are people ready for that responsibility?

Not everybody but you have to look at this from a long-term perspective.  Innovations typically take about 7 years before they lead to real societal change, al least in healthcare.  It is true that the generation requiring care now does not need or want computers, but the generation coming in was brought up with computers.  Even today’s diabetes generation is young enough to have been brought up with computers.  It’s difficult to say how exactly this will evolve but attitudes and expectations are definitely changing.  For example, my son looked at me as if I was crazy when I tossed away a phone book delivered by mail, when I told him what we used to use it for.  They think differently, not only about communication but also about work processes and power relationships.  

 

…… read more click link below

Nice interview Frank Boermeester of The Fifth Conference and i had.

Crowdsourcing to save lives and more on TEDxMaastricht

Set up by the Radboud University Nijmegen Medical Centre in the Netherlands ( @umcn ),two years ago we started as AED4.EU (AED for you but also for EU as in European Union ;-), it was now launched worldwide on TEDxMaastricht April 4th 2011, by its founder Lucien Engelen ( @zorg20 ) transforming it into www.aed4.us (AED for us but as wel as in for US as in United States 😉 

More about TEDxMaastricht on patients perspective you can find in this blogposting Patiens are changing seats : the future of Health.

It is intended as a project to chart all the AED’s of the world, so it is ongoing process in stead of a database with all of them in it already. 

So YOU can help start saving lives by submitting the AED’s (Automatic External Defibrillators) to the independent and non-commercial www.aed4.us to follow on twitter @aed4us, where the date will be used for research as wel, on i.e. coverage, dentisity etc

It is a project to crowdsource all the AED locations in the world, to CREATE a worldwide independent and non-commercial database to share the loactions of the AED’s for free with the help of several app’s, websites and widgets.

With several mobile apps (iphone ipad, android and very soon windows mobile) one can find the nearest SUMBITTED AED. ( so please note, looking for instance for the US, there a only few AED in the system; YET. Whenever you see an AED you can submit it into the website or via the app. It will show up as a UNvalidated AED until one of our partners validates it. We are looking for parters to help us with this, (as to been seen in the video above). Specially nationally or even globally working company’s with many people on the road, like couriers, parcel shippers etc. (pls contact us at info@aed4.eu)

It is about this: